Thursday, March 1, 2012

Hallelujah!!!

I think my nephew would clap about this if he understood it.
 Anyway, any excuse to show off an adorable nephew is a good one!
For those who don't know, my doctors have been desperately trying to get me approval for one of the newer lupus drugs. I have tried all of the older drugs, and they have either not worked or proved to be too toxic for me. (When your bone marrow stops producing blood cells, doctors get all upset, for some reason).

 So, imagine my relief and joy when the phone call that woke me up from my usual 14-16 hours of sleep was the insurance company's calling to tell me that the appeal had been approved. So I now have approval and insurance coverage for Benlysta!

Edit: Unfortunately, I just found out that I'm not allowed to start the Benlysta infusions until after both carpal tunnel surgeries are over. So I'll be starting in April, instead of next week as I had hoped. Still, at least it's something to look forward to!


Edit #2: The rheumatologist called the surgeon, and they decided to let me make the choice whether or not to accept the increased risk of infection. So I will be starting Benlysta very soon, they will operate on  both wrists at the same time, and will give me IV antibiotics just in case.

9 comments:

  1. Hallelujah indeed! Awesome, fantastic, super-wonderful news! I hope they can get Benlysta started right away, and there are no side-effects to bother you. Hope, hope, hope!

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    1. They are hoping to do the first infusion next week. Things are being complicated by the fact that I've got upcoming surgeries for carpal tunnel. I don't think there's much risk of infection from such a small surgery, but the nurse said she had to go check with the doctor. So hopefully it will be sorted soon!

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    2. OK then. April it will be. Healthy wishes to you for simple wrist surgeries and speedy healing, with no lupus shenanigans to make it any worse. I hope to be done with your gloves and sending them in about ten days.

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  2. And I'm praying for a move-up on the surgery date. I am SO glad that approval went through!

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    1. I'm going to call and see if they can operate on both wrists on the first date. That was an option before, it's just a pain to have both hands bandaged up for two days. But now that there's a pressing need to shorten the time, I'm going to call the hand surgeon's nurse and beg and plead. I have good friends and a good church community who will take care of me if/as needed.

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  3. I'm glad you got approval for the medication, and I will pray that you are one of the people for whom it works spectacularly. And you can manage a double surgery if you have to. Forwarned is forearmed, and with four arms, you would still have a couple of hands to work with . . . or maybe not.

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  4. Oh, I have no doubts about my ability to cope with the double surgery; the question was whether the doctor would allow it. His nurse just said that, while she can't say for certain until she talks to him on Monday, she doesn't think it will be a problem. Which means I should be able to start Benlysta sometime towards the end of March.

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  5. I'm clapping for joy as well! :)

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    1. If I were well enough to dance, I would have been doing a major happy dance yesterday when my Rheumatologist relented...I get to start Benlysta next week!!!

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